Things I Wish I Didn’t Know About Cancer, Part 1

Written in 2018, between the cancers.

How it grows

How long it hides

Who places the best IV lines

The number of decisions necessary to pursue treatment

All the side effects and consequences of treatment

What hormone gutting does

All the doctors and supporting medical staff

How much it takes (and it takes and it takes and it takes)

Grief

Ways to prop up a phone for video streaming

Plastic surgery

Any surgery

How long it takes to recover

Words like genomics and oncotype

Cancer Snapshot

A poem, of sorts

 

You will get mouth sores.

With mouth sores, drinking and eating are difficult.

Nausea, dehydration will land you in the hospital, where all the germs are kept.

Start today

8 ounces water

1 teaspoon salt

1 teaspoon baking soda

Swish

Spit

Repeat

4 times or more daily.

 

 

Jab 4/13/2019

*The prompt was “write about water.”

The day after chemo education

Breast Cancer, Part the Second

HR+, HER2- for those keeping score

In February, my regular post-cancer checkup began a cascade of new “chief complaints.” I am once again a cancer patient, and this time, chemo and radiation are both part of the treatment plan.

Last month I had a lumpectomy which is healing very nicely. It’s really been the easiest surgery I can ever remember having. Happily, the tumor was quite small this time, and all the margins and lymph are clear. However…

There are many appointments to come. Chemo itself will have at least two preliminary appointments (that I know of), then 4 treatments separated by 3 weeks, totaling a 3-month course. Radiation will commence two weeks after chemo is resolved. That will be 5 days a week for six weeks. After all that, they will readdress hormone interventions with Aromatase Inhibitors (maybe it will diminish my sense of smell? Jim is hopeful) and whatever else needs to happen in order to allow those drugs to be used.  It’s complicated but a problem for 5 months from now.

“How can I help?”

I’m glad you asked.

I would like to have many inputs of joy. Please share with me moments of joy in your daily life (even just one time). I would like emails, texts, responses on this blog, cards via snail mail, you name it.  Words or pictures, fun music links you’re enjoying. But let them be from you – not memes. Please remember I am unlikely to respond to some or most of these for what I hope are obvious reasons, but they will be appreciated.  I will try to put out updates periodically on this blog, as I am able and have something to say.

As for more practical/tangible help, we will have to see how things develop.  I have learned that different people react differently to these treatments, so whether I will need help with food or transportation or something else is unknown at this time.

“How can I pray?”

I’m glad you asked.

There are numerous side effects on tap for the remainder of my treatment plan, all of them unpleasant. Of most concern to me right now is neuropathy (nerve pain) in fingers. I am quite dependent on my hands to cope with stress and the world in general.

Fatigue/sleep. I am not sleeping well.

I am sad about my workout routine getting clobbered. It has helped a great deal with pain and stress. Surgery has already interrupted it and will interfere more.

 

This is a journey I did not want to repeat, let alone repeat with the added complications of chemo and radiation.  But, I am here and so I will soldier on.  Thanks for caring with me and for me.